Social services for patients and relatives
Patient Experience Program and Hospitality Apartments
Since 2022, the Josep Carreras Foundation has offered a Patient Experience Programme to improve orientation and support for patients and families. The social services the Foundation provides to patients are:
HOSPITALITY APARTMENTS: “A home away from home” programme
The Josep Carreras Foundation offers free accommodation to patients and families at risk of social and economic exclusion, who need to travel away from home to receive long-term treatment for leukaemia or other blood cancers.
A significant number of people need to be in direct and frequent contact with the hospital, after receiving a transplant, whether autologous or allogenic, or CAR-T immunotherapy. This period varies from 3 weeks to 9 months, and can be even longer in some cases. This situation requires long stays close to the transplant centre. Similarly, it is recommended that patients, wherever possible, are accompanied by their family, which is a mandatory requirement for patients who are infants or minors. This implies what can be an unaffordable expense for families, as it includes accommodation, maintenance and other costs derived from their stay away from home.
By way of the social work services at the hospitals, the Foundation hospitality apartments programme offers 6 apartments to be assigned to those most in need, completely free of charge.
All of our hospitality apartments are located close to the public medical centres that perform bone marrow transplants in the city of Barcelona, specifically Hospital Clínic, Hospital de Sant Pau, Hospital Vall d’Hebron, ICO-Duran i Reynals and ICO Badalona.
One of these apartments is also accommodation for home transplant, prepared for patients who need to recover from an autologous transplant (from themself) for a period of 15-20 days, during which they are offered personalised at-home care. The other apartments tend to be reserved for allogenic transplant (donor) cases or CAR-T immunotherapy, given that due to the complexity and complications involved, patients require accommodation for a longer period of time.
The Josep Carreras Foundation has an online medical advice service available 24h, 365 days a year. Patients can use this channel via the website to share their clinical queries, which will be answered promptly by Dr Enric Carreras, haematologist and medical director for the organisation, specialist with significant experience in bone marrow transplant. The Foundation also has access to the experience and collaboration of Dr Juliana Villa, director of the Bone Marrow Donor Registry and Dr Rocío Parody, both of whom are also haematologists with significant experience.
Each year, the online medical advice service provides an average of 1,500 medical advice queries to patients and their relatives from around the world, in particular Spain and Latin America.
PATIENT INFORMATION AND SUPPORT
The patient information and support service handles informative and orientation queries regarding resources, with an average of 16 queries per working day throughout the year. If you have any queries or need more information, contact us at email@example.com or by calling 93 414 55 66.
In order to better accompany the patient and their family, as well as help them to navigate information, processes and resources, the Patient Experience Programme edits new manuals, videos, articles and documentaries of interest each year, both for patients and their loved ones.