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Transparency
To provide clear, detailed and transparent information about our foundation, our actions and the destination of the contributions entrusted to us is our duty and goes beyond legal requirements
Corporate Governance
The guidelines to be followed by the trustees, the team of professionals and collaborators of the Foundation, with the aim of contributing to its mission, respecting its values and avoiding situations that may harm or damage its reputation, are detailed in:
The Good Governance and Regulatory Compliance Report is prepared annually to verify its correct implementation.
Regulatory Compliance
Key laws and regulations applicable to the Foundation
- Law 4/2008 of the third book of the Civil Code of Catalonia, relating to legal persons, Law 7/2012, amending the third book of the Civil Code of Catalonia, relating to legal persons and Law 21/2014, on the protection of foundations and verification of the activity of associations declared to be of public interest.
- Law 49/2002, on the tax regime of non-profit entities and tax incentives for patronage.
- Law 10/2010 on the Prevention of Money Laundering and Terrorist Financing, providing a MONEY LAUNDERING PREVENTION MANUAL, which describes the established procedures and control measures.
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Organic Law 5/2010, of June 22, introduced for the first time into the Criminal Code an express regulation of the criminal liability of legal entities for crimes committed in their name by their representatives, de facto or de jure administrators, workers, and/or employees. The reform of the Criminal Code by Organic Law 1/2015 included various mitigating and exonerating circumstances for legal entities, with crime prevention models or programs being a fundamental part of the exemption from criminal liability. CRIMINAL PREVENTION MANUAL. - Organic Law 3/2018, on the Protection of Personal Data and the guarantee of digital rights, General Data Protection Regulation 2016/679 (GDPR), as well as Law 34/2002, of July 11, on Information Society Services and Electronic Commerce (LSSI), to guarantee compliance the Foundation carries out a biannual audit by an external entity.
- Law 15/2022, comprehensive for equal treatment and non-discrimination and all laws on equality have defined the protocol of action to facilitate the assistance of people affected by a case of harassment.
Key laws and regulations applicable to REDMO
- The Josep Carreras Foundation maintains and manages the Bone Marrow Donor Registry (REDMO) recognized by the Ministry of Health according to the Framework Agreement of June 13, 1994, renewed and currently in force, for the development of the hematopoietic progenitor transplantation program from unrelated donors.
- REDMO is an active member of the World Marrow Donor Association (WMDA), the world’s leading association of all donor registries whose mission is to achieve a world where access to cell therapies for all patients is guaranteed, protecting the rights and safety of donors.
- Since 2024, REDMO has been accredited by the WMDA for compliance with all quality standards with its highest distinction.
- REDMO is authorized as a Tissue Establishment on December 13, 2011 by the Generalitat of Catalonia according to Royal Decree 1277/2003, which establishes the general bases on the authorization of health centers, services and establishments and by Royal Decree 9/2014, which establishes the quality and safety standards for the donation, obtaining, evaluation, processing, preservation, storage and distribution of human cells and tissues and approves the coordination and operation standards for their use in humans.
- Since March 6, 2023, the Generalitat of Catalonia has granted the administrative authorization for the Promotion of Donation.
- Agreements are in place with each of the Autonomous Communities that manage the National Health System and bilateral agreements with donor, collection and transplant centers throughout the territory.
Whistleblowing channel
In case of regulatory non-compliance by the Foundation and/or its professionals/collaborators, you can report it via canaldenuncia@fcarreras.es
The minimum required content consists of the identification of the complainant, a brief statement of the facts, and the identification of the person or group against whom the complaint is directed.
Upon receiving the communication from the Compliance Officer, the appropriate verifications and checks will be initiated, guaranteeing confidentiality and scrupulously complying with data protection regulations.
Accounting
The Josep Carreras Foundation against Leukemia undergoes an external accounting audit annually.
Strategic Plan
At the Josep Carreras Foundation, we work following a five-year Strategic Plan to define our objectives and actions applicable to each line of work.
Quality Management System
The Quality Management System implemented at the JOSEP CARRERAS INTERNATIONAL FOUNDATION follows the requirements of ISO 9001 and WMDA standards, allowing:
- Demonstrate the Foundation’s ability to consistently provide activities that meet the requirements of its stakeholders* and applicable regulatory requirements.
- Increase stakeholder satisfaction by always including continuous improvement in your processes.
* by stakeholders we mean: patients, the scientific community, health authorities, partners, companies, friends, donors, collaborators, and society in general.
The Quality Management System follows the following structure:
Impact measurement system
The Foundation’s mission is carried out by developing its Strategic Plan, and specifically, by implementing the three Activity Programs decided by the Board of Trustees.
- Support for scientific research.
- Search for unrelated donors for bone marrow transplants.
- Social services: shelters, patient care, outreach.
El que una actividad concreta se configure como Programa de la Fundación obedece a diferentes criterios:Whether a specific activity is configured as a Foundation Program depends on different criteria:
- Need identified
- Ability to respond effectively
- Coordination with the public health, research and social services system
- Economic and Technical Possibilities
This process is carried out by the Board of Trustees with the aim of achieving a positive impact for patients. It involves selecting which activities cannot be addressed because they are already covered, because they are beyond the reach of resources, because they involve a risk of dispersion of material and human resources and, consequently, because they are not likely to exert an appreciable change.
The impact of our Programs is measured in various ways, primarily through quantified and publicized metrics, as well as through external accreditations and evaluations.
Support for scientific research
Scholarships and Grants
The granting, renewal and evaluation of the Scholarships and Grants awarded has been carried out by the National and International Scientific Committees based primarily on the publications generated.
Impact measure: The so-called “Impact Factor” and “h Factor” corresponding to each publication are counted, according to internationally accepted standards in the scientific community. Currently, this task is carried out by the Technical Secretary of the Foundation.
Josep Carreras Leukaemia Research Institute
Accreditation: The Institute has received a positive evaluation (B+ rating) twice (2014 and 2018) from an International Scientific Committee appointed by CERCA, an agency of the Government of Catalonia. This evaluation encompasses both scientific and management aspects: scientific output, talent attraction, professional development, platform and infrastructure management, financial management, and social impact.
Impact measure: The Institute publishes its Memoirs which detail, among other aspects, the fundamental variable that proves the fulfillment of its mission, scientific production. All the information is available in the Transparency section of their website.
The Institute plans to obtain other research quality certifications in the near future that will enable it to apply for all types of national funding opportunities.
Search for unrelated donors for bone marrow transplantation
Impact measure: The critical parameters of the Registry’s impact are the number of unrelated donor searches successfully completed, as well as the duration of those searches. All this data, its evolution and other quantitative and qualitative indicators are shown in the Redmo Annual Report and in the Foundation’s Annual Report.
Social services. Reception and Patient Care Apartments. Divulgation
Shelters:
–Certificate of good performance
Impact measure: occupancy of floors and consultations attended, which are reported in the Annual Report.
Accreditation: Website accredited by the Official College of Physicians of Barcelona and by Health on the Net (HON Code).
Other impact measures
In addition to the impact measures of the programs that develop the founding Mission, the team carries out monthly, quarterly and semi-annual monitoring of all types of indicators, especially those related to social and economic support, as well as the frequency of our social networks. The index of the indicators dossier is as follows:
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- Summary of results and trends for the period.
- Partners: active members, new members and terminations for the period, revenue, classification by acquisition channel, age pyramid, penetration by Autonomous Community, most common amounts, loyalty by channel, return on investment in acquisition by channel, and; recovery campaigns, repayments, reactivations; analysis of terminations by reason
- One-off donations: collection, segmentation by type of collection channel, age pyramid, segmentation by Autonomous Community.
- Loyalty actions: communication open rates, analysis by campaign, profitability of actions to increase share by segment, lead conversion.
- Inheritances and legacies: collection, processing and settlement.
- SMS campaigns: results and indicators of conversion to partner
- Charity events: in progress, completed, financial results, impact, promotion of new channels.
- Online store: results, sales.
- Corporate alliances: companies sponsoring communication campaigns, variable contributions, partner companies. Acquisition and retention. Prospecting actions.
- Communication: issuance of press releases on social media (Facebook, Blog, Twitter, Instagram) and in conventional media, publications achieved, reach, mentions, interactions.
- Social media marketing: website access, origin by country, most visited pages, evolution of followers on social networks.
- Quality: Updated process map, revised processes, ongoing improvement projects, quality reports, updated risk analysis, progress in ERP implementation.
- Training: content, participants and evaluations.
- Information technologies: improvement projects, degree of completion of the same.
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Members of Organizations
The Josep Carreras Foundation is an active member of the following organizations:
The REDMO (Bone Marrow Donor Registry) collaborates closely with the following organizations:
Translational research. Participation in spin off
Statement by the Josep Carreras International Foundation on its participation in translational research spin-off companies created by the Josep Carreras Leukemia Research Institute.
Whistleblowing channel
Law 2/2023 of February 20, regulating the protection of persons who report regulatory infringements and the fight against corruption, establishes the Internal Information System as the preferred channel for reporting actions or omissions provided for in the Law itself (there is also the possibility for the complainant to use the channels of the external Complaints channel, in Catalonia, the Anti-Fraud Office).
Thus, the Josep Carreras Foundation has an internal information system (Whistleblowing Channel) that securely guarantees the confidentiality of the identity of the informant and any third party mentioned in the communication, and of the actions that are developed in the management and processing of the same, as well as the protection of data of all of them.
Anyone who, within the framework of a professional or employment relationship with the Josep Carreras Foundation, detects any violation of the legal system (infringements of European Union law, serious or very serious criminal or administrative infringements, among others), may report it through the Reporting Channel by accessing it from the Foundation’s website.
The reporting channel ensures that submitted communications can be effectively addressed within the Josep Carreras Foundation, as this way the Foundation itself will be immediately aware of the reported irregularity.
The Josep Carreras Foundation, through its implemented Whistleblowing Channel, guarantees:
- The confidentiality of the informant’s identity, which may not be communicated to third parties without the informant’s consent, except when said identity must be provided to the administrative and judicial authorities if necessary for any procedure derived from the complaint, in which case the regulations on the protection of personal data in force at any given time must always be complied with.
- The confidentiality of the identity of any third party mentioned in the communication.
- The confidentiality of the actions carried out in the management and processing of said communication.
- The prohibition of any act constituting retaliation against the person making the communication, also guaranteeing the right to take legal or disciplinary action against any person of the Josep Carreras Foundation, Patrons, employees and stable external collaborators who may carry out any act constituting retaliation against the sender.
- The informant has the option to remain anonymous if they wish, without compromising the effectiveness of the communication. While the informant can use the reporting channel anonymously, providing contact information is recommended to allow for proper follow-up and to gather further information if necessary.
- That all members of the Josep Carreras Foundation, trustees, employees, and stable external collaborators, are aware of the strategy for managing communications or complaints and know the processes to follow and their rights as well as their obligations and responsibilities related to the confidential treatment of complaints.
- That all communications or complaints will be recorded in a logbook, as well as the internal investigations carried out as a result of said complaints.
- The right to privacy, defense, and the presumption of innocence and honor of the person accused is guaranteed, informing them of the actions or omissions attributed to them and ensuring they are heard at all times.
- It is guaranteed that all communications will be analyzed and processed, and an acknowledgment of receipt of the communication must be sent to the informant within a maximum period of seven calendar days from the day following its receipt, unless this could jeopardize the confidentiality of the communication.
- Furthermore, a response to investigative actions is guaranteed within a maximum of three months from the receipt of the communication or from the date the acknowledgment of receipt should have been sent. If the case, due to its significant complexity, requires a longer period, this may be extended for a maximum of three additional months.
Communication procedure:
In addition to the Internal Reporting Channel through the website, the informant may make the communication or complaint via email to the address canaldenuncia@fcarreras.es in which case the anonymity of the complainant cannot be maintained but their confidentiality will be. You may also use other means of communication such as postal mail, or verbal communications via the Josep Carreras Foundation telephone or voicemail, and you may even request a meeting to present the communication or complaint, which must be held within seven days of the request at the latest.
All information received must be recorded in a logbook, as well as any internal investigations that may have resulted from it, guaranteeing confidentiality requirements in all cases.
Once the investigation has been completed, a report with its conclusions will be prepared and communicated to the Board of Trustees of the Josep Carreras Foundation, and the corresponding sanctions or disciplinary measures will be agreed upon.
The person responsible for the Whistleblowing Channel, appointed by the Board of Trustees of the Josep Carreras Foundation, is NATALIA GUITERA CALVO, whose email address is canaldenuncia@fcarreras.es.
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Real Estate Policy Statement
Management criteria for properties received as an inheritance or legacy by the Josep Carreras International Private Foundation.
More information here.
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