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Eider
Acute Myeloid Leukaemia.
“On February 15, 2018, we took our little Eider to the pediatrician for the third time in four weeks because she had not recovered from bronchitis that she had suffered in January. Once there everything was diffuse: analysis, specialists who come and go, talking to you without giving you much information, more specialists, worried faces and more tests, more confusion and suddenly darkness, emptiness, fear.
Eider had leukaemia. Without really knowing how, we tried to make everything as least traumatic for our little girl. We decided that all of this was going to be a game, a contest, preparing Eider for everything that was coming. All the side effects of chemo were tests that she would have to overcome to earn rewards. If she peed blue it meant that magic was slowly turning her into a fairy, and if she was lucky and brave she would ‘lose her hair’, thus becoming the most powerful of all: the bald fairy. And that’s how we found ourselves swallowing tears when we had to cut her hair due to ‘medical script demands’ and she was the happiest girl in the world because she was finally becoming the bald fairy. I think that’s when we realized that no matter what happened, Eider was going to win this war. She was discharged in June, and, to this day, our ‘bald fairy’ remains strong and disease-free.”
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Gabriel
Acute lymphoblastic leukaemia.
“My name is Almira and I am the mother of the twins, Gabriel and Martín. But they are not totally identical. Gabriel was diagnosed with acute leukaemia when he was 15 months old. It was and always will be the worst news of my life.
You always think that it will never happen to you, that it only happens in the movies, but it is real. The whole hospital issue was very complicated to manage. I was with Gabriel during the day. Then I was going to look for Martín at the nursery to be with him, give him dinner and put him to sleep. Then I returned to the hospital to put Gabriel to sleep and sleep next to him. I would get up at 6 to go home and wake up Martín, get him ready and take him to daycare, so he would think that he had slept with Mommy. We finally returned home for the first time in 60 days. What a thrill! When Martín saw Gabriel, he was surprised. And instantly they were kissing. Today, Gabriel is very well, and he is very happy, especially when he is doing mischief with Martín.”
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